Before I begin explaining everything, I would like to thank everyone out there for keeping Lilly in their thoughts and prayers. You have all along with God's grace have given me and her father, Charlie, the strength to get through each day. With that we are able to help Lilly stay strong before her surgery. Before I get into that I'll start off from the beginning.
We took Lilly into see her pediatrician on Monday morning because we were worried she may have conjunctivitis (otherwise known as pink eye). When we got there the nurses did not even seemed interested in that, but were concerned about her rapid breathing. To me and Charlie this was normal because this is the way she has been breathing since birth. We did ask the pediatrician in the first few days she was born, but he stated that it was normal and moved on. She had no other signs of a heart problem. Well at the doctor's office the nurses checked her temperature, blood pressures, respirations, and oxygen levels. Her oxygen levels seemed to be somewhat low and her respirations high. The doctor listened to her heart and then called in another doctor to do the same. After checking and re-checking everything (which took 3 hours) the doctor's decided they heard a heart murmur and suggested that we go straight to Greenville Memorial, which we did.
At Greenville Memorial Lilly was tested and re-tested for all kinds of things. She was very irritable by now because so many people were messing with her. She was exhausted, but one of the only places she would sleep was on my belly. She wanted to stay close to me and her daddy. To make a long story short, the cardiologist found problems with her heart through a echo cardiogram. He decided right away that we needed to be flown to Charleston because he knew Lilly would have to have an operation. At around 7:15 on Tuesday evening Lilly and I got onto a jet and were in Charleston in about 35 minutes. In one day Lilly has rode in an ambulance and flew in a jet all before she turned 2 weeks old!
We took Lilly into see her pediatrician on Monday morning because we were worried she may have conjunctivitis (otherwise known as pink eye). When we got there the nurses did not even seemed interested in that, but were concerned about her rapid breathing. To me and Charlie this was normal because this is the way she has been breathing since birth. We did ask the pediatrician in the first few days she was born, but he stated that it was normal and moved on. She had no other signs of a heart problem. Well at the doctor's office the nurses checked her temperature, blood pressures, respirations, and oxygen levels. Her oxygen levels seemed to be somewhat low and her respirations high. The doctor listened to her heart and then called in another doctor to do the same. After checking and re-checking everything (which took 3 hours) the doctor's decided they heard a heart murmur and suggested that we go straight to Greenville Memorial, which we did.
At Greenville Memorial Lilly was tested and re-tested for all kinds of things. She was very irritable by now because so many people were messing with her. She was exhausted, but one of the only places she would sleep was on my belly. She wanted to stay close to me and her daddy. To make a long story short, the cardiologist found problems with her heart through a echo cardiogram. He decided right away that we needed to be flown to Charleston because he knew Lilly would have to have an operation. At around 7:15 on Tuesday evening Lilly and I got onto a jet and were in Charleston in about 35 minutes. In one day Lilly has rode in an ambulance and flew in a jet all before she turned 2 weeks old!
2 comments:
I will continue to pray for Lilly and your family. Please let us know how things are going. Shannon (one of Tina's friend)
This is Paula, Tina's neighbor from across the street. We will continue to keep Lilly and all of your family in our prayers. If you need anything please let us know. Give Lilly a big kiss for us and tell her we love her.
You say "I can't go on"
God says: "My grace is sufficient" II Corinthians 12:9 & Psalm 91:15
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