Today was the day of surgery. We all had a very long night. We stayed up with Lilly pretty much all night except for a few hours when we tried to sleep. At around two in the morning Lilly had her X-ray that would be used as a baseline for her surgery. At around six the Chaplain came and we all had a prayer for Lilly before her surgery. Finally at 6:30 they wheeled her off to fix her tiny heart.
The surgery is going well at the moment. We are receiving periodic updates about her status. The first update stated that she had just been put on the heart lung bypass machine and was tolerating it well. The next update we got the nurses stated that the surgeon was 50% done with the procedure and everything was still going well. Lilly was stable and we would hear back soon. The last update that we have heard is that the surgery is almost complete. The main heart surgery was over and they had taken her off the heart lung bypass machine. They are now watching the bleeding in her heart and keeping an eye on her vital signs. I just talked to the nurse again and she said Lilly is on her way back to the ICU. Thanks for all your prayers! Surgery was successful!!! Please continue to pray for her full recovery.
About Me
- Lilly Elizabeth
- My daughter, Lilly was born on July 10, 2008. After 10 days of having our beautiful baby at home, we were quick to realize our world would be changed forever. We were told that Lilly's heart did not form correctly and she would have to have several heart surgeries througout her life to fix this problem. He first surgery was when shhe was 17 days old. We then soon discovered that Lilly has a chromosome deletion, known as DiGeorge Syndrome or VCFS. Our little angel is doing great and grows more and more each day.
4 comments:
That's good! I am so glad everything is going well!!!
Dearest Michelle & Charlie,
God is good....just never give up the Faith....Little Lilly is absolutely gorgeous - Bless her little Heart!
Best love and prayers,
Jacques, Lynn, Jason, William & Candice Botes
We are so happy to hear that Lilly’s surgery went well. Please know that we will continue to keep Lilly and your whole family in our prayers as she recovers and is soon to return safely home. Sincerely, Dr. Jones, Dr. Moll, Dr. Dobson, and all the Parkside staff.
Brandon and I are praying for you guys, just keep us posted about whats going on. I hope everything goes well.
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