Photos from our trip to Outerbanks
About Me
- Lilly Elizabeth
- My daughter, Lilly was born on July 10, 2008. After 10 days of having our beautiful baby at home, we were quick to realize our world would be changed forever. We were told that Lilly's heart did not form correctly and she would have to have several heart surgeries througout her life to fix this problem. He first surgery was when shhe was 17 days old. We then soon discovered that Lilly has a chromosome deletion, known as DiGeorge Syndrome or VCFS. Our little angel is doing great and grows more and more each day.
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