Home at last

Hey everyone! Sorry about taking forever to update, I've been busy with Lilly at home. Yes, we're home! We've had our follow-up with the cardiologist and he said her heart looks great and she is healing wonderfully. He dropped had lasix to once a day because she was getting a little dehydrated, but other than that God is trully Good. We went to the pediatrician today and she is a whole 9 pounds, which is a significant difference since the surgery. Our next appointment will be to get her 1 month shots. (won't be fun). She is awake much more nowadays. She loves to stare at people talking to her. She is now able to focus her eyes and she found her hand. She can't ever decide whether she wants her passie or fingers.

We've been busy with several doctor's appointments, she now has five different doctor's. We will be seeing a geneticist, endocronologist, infectious disease doctor, a cardiologist, and her pediatrician. Babynet will also be coming out the the house each week to make sure that Lilly is meeting her developmental milestones. In the meantime, I start back to school next week and am trying to get ready for that while caring for Lilly. So I'll try to update as soon as I can. God Bless everyone who has and is helping us get through this difficult time.