We are having a great break so far. Yesterday and today me and Lilly got to spend the whole day together, no distractions. We went to Papas and cleaned a little. We even cheered for the Dallas Cowboys with our new attire that Uncle Marcus gave us.

Today we played, went grocery shopping, and Ahead start came to work with Lilly. They said that she is doing really good, but an occupational therapist is coming to work with Lilly's arm strength in January. Right after play therapy, Lilly passed out. She was exhausted after her "baby yoga."

This week is going to be busy for us, I have a dentist and doctor appt. and Lilly has a synagis shot and endocrinologist appt. The endocronologist is going to test her calcium levels to see if they have changed at all. Let's hope that everything is still ok. I am loving being out of class and being with my little angel everyday. Her personality is really changing and developing. She is such a carefree baby and always goes with the flow. I am very excited because this Thursday we are going to start eating cereal! We've been wanting to start this for awhile, but have been putting it off. Lilly is starting to wake up every three hours to eat, so we've decided to give her cereal at night to help hold her over. I am nervous about starting foods because I know that children with DiGeorge can have difficulties eating. She doesn't right now as you can see haha. Solids might be a different story. Until next time...

Outerbanks

Photos from our trip to Outerbanks

Lilly and her friend Kyla on Halloween.

I just know she's thinking "what are you doing to me."

She is a passie girl

She loves her baby, bunny, and to snuggle.

Wow, it's been forever since we've posted anything. I know several people have been asking. I apologize! We are doing excellent and I have lots of information about Miss Lilly. Well first off the semester is almost over and I have finished my OB, PEDS, and 1st MedSurg clinicals! YAY! Thats the reason for being so delayed.

Well to get started with Lilly...she is almost 5 months old and growing. She weighs almost 14 pounds and is 23.5 inches long. She is now rolling over from her tummy to her back and "talking" up a storm. She smiles at everything and such a happy baby. She barely ever cries (knock on wood). We hope to start her on cereal and juice soon.

Onto her health..we had a scare about a month ago. She was in the hospital for about a week. We thought she had a seizure so we went to the emergency room and they admitted her. We had to go through lots of tests, and everything came back normal, which is excellent, but we still do not know what this seizure activity was. The doctor says that it may have just happened once and may never happen again.....so far, so good. She is growing appropriately and has not been sick other than a minor cold, which is excellent considering her immune system. Lilly's cardiologist says her heart looks great and we do not have to go back for another 6 months.

When Lilly got better, we went to Outerbanks for three days. We had a blast! I'll post pictures later tonight from our trip. We did not really get to take Lilly on the beach because it was way too windy and cold. Me and my sister looked for sea glass, but just found several shells. While looking, Melanie almost got knocked down by the waves, so everytime the wave went out we had to hurry and grab shells and run back. Another hit from the trip was "Swiper." Each night, a fox would come up to our porch and eat food that we left out there for him. All the kids thought he was swiper. We had a long trip back and Lilly was not happy by the time we got home. I had to switch out car seats because after the trip of 10 hours, she screamed everytime we put her in her car seat. After we switched it out, she was fine. How weird! She def. did not want to drive another 10 hours, that's for sure.

I want to say CONGRATUALTIONS to Nicole/Jason and Kelly on the births of their beautiful babies.

Here are some pictures from the past two months. I will post more later tonight when I can get to my camera.

Doctor Appointment Update

We went to the Infectious Disease doctor today and so far, so good. She said that she looks great, but Lilly had to have some lab work done so that they could test her blood for immunodeficiencies. We will find out the results by Monday. If her levels come back low, she will have to be placed on a routine intake of antibiotics to help keep her free from illness. If her levels come back fine, then we will go back to this doctor 1 year from now, unless Lilly gets sick constantly. Please keep her in your prayers as we wait for these results to come back. We still have not heard back from the geneticist, but hopefully we will soon. God Bless

We're sleeping great through the night now! Lilly only gets up once or twice to eat and then falls right back to sleep. It's taken us awhile to get her on a schedule because after her surgery we kind of just let her run her own schedule. She is such an active little girl, who is always cheerful. On Sunday, we took Lilly to get her picture taken and they are adorable! I am so excited to share them with everybody. When I get them uploaded I will post them. If anybody would like one please let me know so that I don't leave anyone out. Tomorrow we go to the Infectious Disease doctor to have Lilly's immune system looked at. I'm not exactly sure what this visit will entail, but I will be sure to update everyone. So far, she has been a pretty healthy little girl. We are still trying to get over a runny nose, but other than that everything healthwise is going great. We still continue to pray for her each day as she develops and gets bigger. She is such a strong little girl.

More pictures..

Hiding behind one of her first smiles.
Sleeping with her bunny that Papa (Charlie's dad) bought her.
Lilly loves the mobile in her crib. I even catch her talking to it sometimes.
All smiles for Grandmama!

Bath Time!

Holding her passie in, now all she does is take it out and sucks her thumb or screams.

She didn't like her first bath at first.

Then she loved it, and stills loves her bath time.